Monday, December 27, 2010

Parent Empowerment Call, Jan. 6

The next Parent Empowerment Call will feature Kim Miller, Statewide Leadership Coordinator for the Illinois Childrens' Mental Health Partnership Team. The title for the call is "Becoming a Leader of the Pack".

This is a toll-free educational call being offered to all parents in Illinois who have a child with an emotional and/or behavioral concern, and it will focus on giving parents information they need to advocate for and support their children.

The call is scheduled for Thursday, January 6, 2011, from 12:00 PM - 1:00 PM.
Toll-free Access: 800/260-0712
Participant Access Code: 120964

Parent Empowerment Calls are held monthly on the first Thursday of the month.

Should you have any questions, please contact:
Judy Hutchinson at judy.hutchinson@illinois.gov
Family Consumer Specialist, Region 5
DMH Child & Adolescent Network
1501 Olive St.
Lawrenceville, IL 62439

Saturday, December 18, 2010

K.A.R.M.A.

Kids Against Ridicule, Meanness and Aggression (K.A.R.M.A.)

When I was traveling last week in Florida, I happened to catch a radio program and interview with Jessica Brookshire, who is a 2009 honors graduate of Auburn University with a degree in International Trade and Spanish and a minor in Political Science.

Jessica created a grassroots crusade to end bullying in school-aged children across the nation.

To learn more about K.A.R.M.A., visit www.thekarma.org

Jessica is a young woman with a dream and a mission. She is surely going great places! Three cheers for Jessica Brookshire!

Wednesday, December 1, 2010

Parent support by school districts

To what extent are parents of students in special education in schools in McHenry County provided training and support by their school districts?

Do you know that the school districts are supposed to provide support for parents of special ed students? Do they do it? Do they provide meaningful support through programs and groups?

Is there a parent support group in your school or district? Is there a parent advisory council in your district?

Parents of special ed students get smart through education. They learn what the laws are. They learn whether the IEPs of their kids are SMART IEPs (vs. "dumb" ones). Dumb IEPs are the typical, off-the-shelf IEPs with no concrete, measureable statements or requirements and no accountability on the part of the school. "Johnny will do better" is typical of statements in "dumb" IEPs.

Parents want meaningful school-home communication and not just discipline notifications days after an "event" at school.

Parents want to be valuable members of the IEP Team and partners with teachers in the education of their children.

And many teachers want also to partner up with the parents. Unfortunately, in many school districts those interested teachers (and staff members) find themselves at risk of losing their jobs, if they do so.

And that needs to change!

Parents don't have to wait forever for school districts to acknowledge their requirement to provide training and support for these parents. Parents can begin to band together now.

Want help? Let me know.

Saturday, November 27, 2010

Information Night - Dec. 7

A two-hour presentation is scheduled at the Special Education District of McHenry County (SEDOM) on December 7th for parents or other individuals who are interested in learning more about the services of Pioneer Center for Human Services and of Options & Advocacy for McHenry County.

This program will run from 6:00PM to 8:00PM at the SEDOM Center, 1200 Claussen Drive, Woodstock. Representatives from Pioneer Center and Options & Advocacy will present information about services and answer your questions.

There is no charge for this program.

R.S.V.P. Gay Szara at gszara@sedom.org or call her at 815/338-7411

See information also at http://www.pioneercenter.org/ and www.optionsandadvocacy.org/

Thursday, November 18, 2010

Special Ed Survey – Spring 2010 (Part 2)

In the Spring 2010 survey of parents of Special Ed students, Woodstock District 200 was to circulate the survey form to parents of all special ed students. This would be over 1,000 students. The number of parents? 500-750?

How many surveys were returned? I reported the number earlier this year. Off the top of my head, I think there were about 61 completed surveys. I think there were nine parents who indicated they did not want a Parent Advisory Council. At the time I wondered, “Where are the other 500???”

Following are some of the programs and training that parents want:

Special Ed procedures
IEP vs. 504 plans
Building partnerships
Special Ed law
Parent training
Special Ed eligibility
Allergies and medications
IEPs
Least Restrictive Environments (LREs)
Outside agency involvement
Homework help
Bullying
Discipline
Autism/sensory/emotional/behavior
After school programs
Health support
Inclusion
Case management
Tips for parents
Transportation
Preparing for the future
Adult/Care
After high school
OT/eating disorders
Asperger’s
Reading help

If the school district thought it had to provide all of this training and these programs, they would run for cover. They don’t. Parents will participate, help, lead, do, plan, provide.

What the school district can do is stop getting in the way. It’s going to take more than a few parents to make this happen.

Are you a Woodstock D-200 parent? Contact me, and I’ll help you get in touch with other local parents.

Wednesday, November 17, 2010

Special Ed Survey – Spring 2010 (Part 1)

What do parents want for their kids in Special Education in Woodstock?

One way to find out, if you are school personnel, is to assume you know and then just force-feed it to the parents. This is how some school districts operate. I attended a meeting in Huntley of parents of special ed students, and I heard administrators say more than once, “We know what is best for your kid.”

Yeah, sure. How does a teacher or school staff member know what is best for a kid with autism or some other disability, without knowing all the ways in which that particular child reacts to changes in his environment?

“Just sit still.”
“Don’t talk.”
“Don’t move.”
“Don’t throw…”

Back in the Spring of 2010 I approached the Woodstock District 200 Special Ed Department to conduct a survey of parents. To its credit, it did. The Department even compiled the results of the survey. What it did with them after that, is anyone’s guess.

I tried to get a Parent Advisory Council formed and functioning before school let out. It didn’t happen.

I tried to get a Parent Advisory Council formed and functioning during the summer, because half the parents who responded wanted to meet during the summer. It didn’t happen.

I tried to get a Parent Advisory Council formed and functioning this fall. No luck.

In fact, now I’ve been told that I can visit certain programs, but I shouldn’t expect to be further involved. The reason? My stepson “aged out” of Special Ed when he reached his 22nd birthday last July, and now I no longer have a child in the District’s schools.

Many of us special ed parents have learned a great deal about special education laws, the Illinois State Board of Education, WrightsLaw.com, advocacy, accommodations and programs that will help kids in special ed and help their parents to navigate the system. Should other parents have to fight all the battles all over again, or can they learn from the experiences of others? They can, if those parents are included and permitted to share their experiences.

Obviously, learning from others is the fastest way. But some school districts discourage that by separating and isolating the parents. What they fail to acknowledge is the “Team” approach to educating the special ed kid. The parent is a valuable, and equal, member of the Team.

Most parents don’t feel part of any team, when it comes to their kids’ education.

A Parent Advisory Council is an important step for a school district, and it shouldn’t be feared by a school district. Yet it is. Well, parents are tired of being kept in the dark.

Some of us are ready to turn up the lights! See Part 2 for what parents asked for in last spring’s survey.

Saturday, October 30, 2010

Your child's treatment team - who is on it?

The next Parent Empowerment Call (PEC) will be Thursday, and the topic will be “Who’s who on My Child's Treatment Team?”

These one-hour teleconference calls are worth it. They provide valuable information, and they are free.

The calls are sponsored by the Illinois Department of Human Services, Division of Mental Health - Child and Adolescent Services. Got that? (There will be a test later...)

The topic for this call will be “Who’s who on My Child's Treatment Team?”

The presenter will be Chris Gleason, Chief Clinical Officer, Family Service and Community Mental Health Center of McHenry County.

Time? Thursday, November 4, 2010, 12:00 PM-1:00 PM C.S.T.
Place? Your telephone. Call 800/260-0712
Enter the Participant Access Code 120964, when prompted. Call in about 11:58AM.

Please listen carefully for any instructions to mute your phone (if you can) and for any Q&A period that will probably follow the basic presentation.

This is a toll free educational call being offered to all parents in Illinois who have a child with an emotional and/or behavioral concern. It will focus on giving parents information they need to advocate for and support their children.

Should you have any questions, please contact:
Judy Hutchinson
Family Consumer Specialist, Region 5
DMH Child & Adolescent Network
1501 Olive St.
Lawrenceville, IL 62439
judy.hutchinson@illinois.gov

Wednesday, October 27, 2010

I.E.P. - What's it mean?

I.E.P.

Individualized Education Program. That's Individualized Education Program.

It doesn't mean individualized, if the District can afford it.

It doesn't mean individualized, if the District would rather follow a one-size-fits-all approach.

It doesn't mean individualized, only if the teachers want to do it.

It doesn't mean individualized, if the parents don't know better.

It doesn't mean individualized, if the teachers are brave enough to stand up to administration.

It does mean tailored to the individual child and his or her needs.

It does mean that Special Education Coordinators of the District shouldn't just slap on out-of-the-box, off-the-shelf, straight-from-teacher-training-workshops accommodations that will not be implemented or cannot be measured.

Pete and Pam Wright (www.wrightslaw.com) said in a Chicagoland workshop several years ago that no child with an IEP should be failing. This does not mean giving As and Bs to a student who cannot read.

Example: Reading is a skill that must be learned by the child capable of learning. If a student is in 10th Grade but reading at the 3rd-4th Grade level, should there be any question whatsoever that the student needs, and must be provided with, the necessary instruction and tutoring to improve reading skills?

Sunday, October 24, 2010

Available in Woodstock or McHenry County - Kirk Martin

Maybe I should go to work for Kirk Martin. I willingly promote him and the workshops that his 17-year-old son, Casey, present all over the eastern half of the United States. Yesterday a friend and I drove to Geneva, Ill. for Kirk's workshop at Geneva High School. This is the fourth time I've attended a workshop by Kirk, and this one, too, was worth the trip.

I overheard compliments from both teachers and parents who attended. There were even a few school children there, and Kirk included his remarks to them, so that they would feel involved and included, not just "talked about." But the meat of his workshop is for parents and is information that parents can benefit greatly from hearing (again).

Should I go to work for Kirk? Working with him would be great. Not sure about the pay, though, since many of Kirk's workshop are offered without charge. Even if he paid me 25% for promoting them, 25% of zero is - come on, you math students; what's the answer?

Kirk and Casey have produced a series of CDs and DVDs, which are sold at programs. Yesterday's proceeds from CD sales? Donated 100% to an Oak Park home for abused and orphaned children. For information about workshops and other trainings and CDs, visit www.celebratecalm.com

We could have a workshop right here in Woodstock or in McHenry County. If 200-300 parents contacted District 200 (not just Special Education), maybe they'd listen to you. If you do make a contact, let Kirk know, so that he can track efforts. Let him know the name and title of the person you contacted and what the result was.

Kirk was here about three years ago and presented a Saturday morning workshop at the Unitarian Universalist Church in Woodstock. Teachers and parents came from all over the North Shore? From Woodstock? I think I saw one.

Anybody wish to help organize and promote it?

Monday, October 18, 2010

When kids don't try


The following is copied from a recent newsletter of Kirk Martin, "America's Calm Coach", and his 17-year-old son, Casey. Kirk and Casey travel the eastern half of the U.S. to present workshops for parents, teachers and students. Visit http://www.celebratecalm.com/ and also check out their radio talkshow schedule.

"As educators and parents, we all want children who are confident, curious and responsible. We see kids struggling and are so tempted to say, 'If you would just apply yourself more...' or 'If she would put forth more effort...'

"It's frustrating because we see bright kids struggle with academics and behavior. But why is our first assumption that it's only a matter of 'applying yourself?' If it were that easy, don't you think our kids would try harder to avoid harsh consequences?

"Sometimes we don't realize that our kids ARE trying, that it takes herculean emotional energy to survive a school structure that exploits your weaknesses: you have to sit, listen and recall information under pressure; you are a conceptual, idea person, but tests are based on sequential, multi-step instructions; it's difficult to focus with kids surrounding you, some of whom pick on you; recess and lunchtime are supposed to be a release, but they cause great anxiety. So you spend all your energy holding it together and then an adult comes along and says you aren't applying yourself.

"Want to know my reaction? I used to cry, shut down or defiantly say two words I can't say here. So if your child or student is not performing to standard, I encourage you to ask yourself this one question:

"What kind of tools can I provide the child to be successful? Please think tools. No child wants to fail; he usually needs tools. Does the student need more challenging work or is she overwhelmed? Does he need his brain stimulated in my class? Do I need to provide specific, concrete directions? One of Casey's passions is helping other kids like him take ownership of their academics. Listen to what one student did after listening to the Straight Talk for Kids CDs.

"'I burned your Kids CD stuff onto my iPOD and it's pretty interesting. So I made a deal with my Geometry teacher. I'm allowed to stand or sit on the floor in the back with my knees up and book on my knees. She lets me chew gum and lay down when I'm working on problems and that helps a ton-I've always done better when listening to music or chewing on stuff, but now I get why that is. She asked if I'd feel weird being back there like that and I said no way, I've always felt different and it helps me so it doesn't bother me at all. It lets me spread out plus I'm more comfortable and I can bounce my legs without bothering anyone. When we get partners and solve problems together, about half the class ends up on the floor. I told my teacher that I'm not weird, I'm a trendsetter! I'm getting a B now instead of a D so I'm pretty psyched because that means I can drive soon! Thanks for getting it.'
Josh Z., Atlanta, GA

"How can you motivate your child/student internally by getting them using their particular gifts and passions? How can I control my own anxiety about their struggles so they don't shut down?

"Praise and encourage kids to be themselves. Get tools for your child so they can take ownership and be internally motivated at school. Thousands of kids listen to Casey's CD daily for encouragement and use the Workbook to plan their future."

Subscribe to Kirk's free e-newsletter. You'll be glad you did. Go to http://www.celebratecalm.com/

Kirk and Casey will be in Geneva, Ill. on Saturday, October 23. Their program starts at 10:00AM.

Thursday, October 14, 2010

Stop defiance and power struggles

Geneva will be the place to be on Saturday, October 23, at 10:00AM, if you are a parent of elementary, middle or high school students who are a bit of a challenge at times.

I don't mean Lake Geneva or Geneva, Switzerland.

I mean Geneva, Illinois! Kirk Martin and his 17-year-old son, Casey, will be at Geneva High School to present their program, "Are you at your wits' end? 10 secrets to stop defiance and power struggles."

To view the flier for this FREE workshop, go to www.celebratecalm.com Then click on Schedule and scroll down to October 23.

Geneva High School is located at 416 McKinley Avenue, Geneva, Ill., only 35 easy miles from Woodstock on a Saturday morning.

I will guarantee you that you'll be glad you made the effort. Take your kids with you. They will get a lot out of it, too, and their questions might surprise you.

I've known Kirk and Casey about three years, and I highly recommend their programs!

Friday, October 8, 2010

Lake County mom - please call again

Yesterday (Thurs., Oct. 7) a mom (A.C.) from Lake County (Ill.) who had come across this blog called me and left a message about some special-education problems with her son. Unfortunately, there were two skips in her phone messages, and two portions of her message were not clear.

She mentioned that she was friends of (this part was skipped in the message), and only the last four digits of her phone number (ending in -85) were in the message.

Will you please call again? Thanks!

Thursday, September 9, 2010

Bullying - in my school district???

Here we are, less than one month into the new school year...

Does bullying exist in your child's school district? What about in his or her own school?

You bet it does!

And it occurs not only between students, but it might be occurring by teachers!

Watch this video titled Bullied: A Student, a School and a Case That Made History: www.youtube.com/watch?v=DEH75H8fPQY

Then contact your school's principal and ask him (or her) to order a copy for his school. Ask by what date it will be ordered (budget won't be a problem; it's free. If you need to take a 44-cent stamp to the principal's office, take it (but it probably can be ordered by e-mail, too)).

And then follow up in two weeks to ask if it has been received. And then every week until it is received. Then ask if the principal and staff have watched it. And when it will be shown to every student in the school.

Get involved! Remember, you are the parent. You are responsible to see that the schools are safe for your child(ren).

Be relentless. And don't go it alone. Align yourself with other parents and insist on safe schools. Now!

And post your comment here, naming the school you will ask to order the film today.

You think that teachers don't bully students? "My son has a teacher who actually calls the kids wieners and makes fun of them if they are struggling. He has a mug and sign in the classroom that say 'I see stupid people'.”

That quote is from an article on www.WrightsLaw.com Go to that site; then search for "Bullying" and look down the list for that article. You'll spot it easily from the leading quote.

Does it happen in Woodstock District 200? You bet! It was spotted by a technical consultant who was called in to conduct a proper Functional Behavior Assessment for a student whose absenteeism was over 60% for the school year (and never reported as truant!). What happened to the teacher? Nothing!

Friday, September 3, 2010

D200 SpecEd Parent Advisory Council

Parents of students in Special Education in the Woodstock District 200 school district are still interested in a Parent Advisory Council.

Last spring surveys were to be distributed to parents of all special education students. There are probably at least 1,000 special ed students in District 200. How many were received?

About 60 surveys were returned by parents. Ninety percent expressed interest in a special ed parents' advisory council and information and training to help them with their child's education. A few were not interested. I was curious about the 700 parents who did not return surveys and wondered why they didn't return the surveys.

I could guess at some of the reasons. I'd rather know the reasons.

I tried to get a kick-off meeting before the end of the school year. No success.

I tried to get a summer kick-off meeting scheduled. No success.

On August 25 I emailed the Special Ed Dept. about getting together to discuss such a council. In a week, no reply.

Would District 200 like for this idea to just die on the vine? It's not going to happen. Some parents have spent hours (weeks! months!) and thousands of dollars getting "educated", and we are happy to share what we have learned with other parents, so that they don't have to face the drudgery of endless battles just to get the right educational services in place for their kids.

Pass information about this blog to all the parents of special ed kids in District 200. To date the district has done a fine job of keeping parents isolated. That time is past.

Well-informed parents make better partners with schools. That's the atmosphere that should exist. It could exist. It will exist.

Watch here for a list of programs and information that parents said last spring that they want. Coming soon.

Tuesday, August 31, 2010

Social Thinking

Is your child struggling to make and keep friends?

One of the big problems for children in Special Education is social skills. The schools can talk about social skills, but "talking" about them doesn't help much. Students can hear about them, but they have to have opportunities to use them in safe environments.

Recently I was looking for programs to help students learn social skills, and a friend in Huntley recommended Mary Topolinski and her Social Thinking program.

Mary conducts Social Thinking instruction, training, coaching with teens and with other age groups. This friend told me that she knows several parents who said Mary made a big impact on their kids.

You can check out Mary's work at www.mjthinkssocial.com/

I don't know Mary yet, but she probably has ideas about places to make and find friends and to socialize.

Years ago a therapist recommended social skills training by the University of Illinois at Chicago, but I was never able to track down classes. They might have been in Skokie or some other town miles and miles away - a lot of good that does the student in Woodstock who is trying to develop social skills!

Monday, August 30, 2010

Parent survey - do it now

The Family Resource Center on Disabilities has passed along information about an important surveys prior to US Department of Education, Office of Special Education Programs (OSEP), visits in Illinois before the end of 2010. I highly recommend the FRCD. Back in 1997 I attended one of its Special Education Rights workshops, and it was a solid foundation for my advocacy for my stepson here in Woodstock.

Parents of children ages 0-3 and 3-21 are invited to complete the surveys. FRCD wrote:

Dear Illinois Families:

On November 2, 2010, the U.S. Department of Education, Office of Special Education Programs (OSEP) will be visiting:

the Illinois Department of Human Services to review the effectiveness of Illinois following the rules and regulations for Early Intervention Services under Part C (0-3) of the Individuals with Disabilities Education Act (IDEA);

OSEP will also be visiting the Illinois State Board of Education to review the effectiveness of Illinois following the rules and regulations under Part B (3-21) of IDEA.

OSEP has requested the Parent Training and Information Centers of Illinois to survey parents about their experience and knowledge with the special education system in Illinois. This is a great opportunity for you to contribute to the improvement of the delivery of special education services for the children with disabilities in Illinois.

Please take a moment to complete the survey if you have children who have recently received or are currently receiving special education services. We invite you to forward this survey to other families for their input.

The survey links are:

Part C (0-3 year old)
http://www.surveymonkey.com/s/W77JN97

Part B (3-21 year old)
http://www.surveymonkey.com/s/FDJ5Z76

If you have any questions, please contact the Family Resource Center on Disabilities at (312) 939-3513.

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The Family Resource Center on Disabilities (FRCD) offers parents of children with disabilities birth to 21 years old, their helpers, relatives, professionals, and interested community members no-cost training and workshops, telephone and e-mail assistance, and resources to help claim their role as the child's most effective and significant advocate.

You are invited to contact FRCD for information, resources, support and training. FRCD is located at 20 East Jackson Blvd., Room 300, Chicago, IL 60604. For information, visit www.frcd.org/, call 312-939-3513 or write to info@frcd.org

Sunday, August 29, 2010

Service Animal OK in school


An Illinois appeals court smacked down a school district recently.

The Fourth District Appellate Court considered a case brought to it to allow a first-grade student to have his service dog, Chewey, in school. The Villa Grove School District (located southeast of Champaign, Ill.), in its infinite wisdom, apparently had thought the dog was a pet and didn't want the student to bring the dog to school.

The court, however, ruled in favor of Kaleb Drew and ordered that the school allow him to take his autism helper dog to school. The family's argument was that the boy's yellow Labrador retriever is a service animal. (Pictured is an example of a service dog.)

How does this animal help Kaleb? According to the boy's mother, the "dog prevents the boy from running away, helps him focus on his homework and calms him when he has a tantrum."

Service dogs wear vests that identify them as service animals. Please do not approach a service animal or attempt to pet it. The animal is not a pet. When it is wearing its vest, it is working. Usually the owner will ask you to step back, if you approach a service animal for the purpose of petting it.

Please be considerate of service animals. You don't have to go out of your way to avoid them; just act as if they aren't there.

Tuesday, August 24, 2010

Tonight - anti-bullying vigil

Tonight at 7:00PM there will be a vigil in memory of a Johnsburg boy and other children who have committed suicide after being bullied, sometimes for years.

The candlelight vigil will begin at 7:00PM at the Midwest Bank, 3805 N. Johnsburg Road, in Johnsburg.

Bullying is occurring in many McHenry County schools. My own experience with the Woodstock School District is that heads nodded when bullying was reported, and District officials re-affirmed the Safe Schools policy.

And bullying continued.

It starts in the grade schools, and there is where it should be nipped in the bud. When it occurs in middle and high schools, discipline should be swift and firm.

It's not. And so it continues.

In one case of which I have personal knowledge, a consultant from the Illinois State Board of Election had been called in and she herself observed bullying in the classroom - by staff!!!

It's a good thing she was called in. What teacher would have ratted out another teacher for bullying a student?

Monday, August 2, 2010

Parent Empowerment Call - August 5

Illinois Department of Human Services, Division of Mental Health, Child & Adolescent Services would like to invite all Illinois parents of children with emotional and/or behavioral health concerns to join in on the upcoming Parent Empowerment Call.

Parent Empowerment Calls are held monthly on the first Thursday of the month. Two sessions are available, available times and dial in numbers details are listed in the attachment included with this notice.

The next Parent Empowerment Call is scheduled for Thursday, August 5, 2010 from 12:00-1:00 PM
Toll Free Access 1-800-260-0712
Participant Access Code: 120964

This is a toll free educational call being offered to all parents in Illinois who have a child with an emotional and/or behavioral concern, and will focus on giving parents information they need to advocate for and support their children.

Sunday, July 11, 2010

Two Choices - Shay's Story

I don't know the source of this story. I've seen it before and was happy to receive it again today. Enjoy. And feel free to forward it. Use the little white envelope at the end of the story.

Two Choices

What would you do? You make the choice. Don't look for a punch line, there isn't one. Read it anyway. My question is: Would you have made the same choice?

At a fund-raising dinner for a school that serves children with learning disabilities, the father of one of the students delivered a speech that would never be forgotten by all who attended. After extolling the school and its dedicated staff, he offered a question:

”When not interfered with by outside influences, everything nature does, is done with perfection.”

Yet my son, Shay, cannot learn things as other children do. He cannot understand things as other children do.

Where is the natural order of things in my son?

The audience was stilled by the query.

The father continued. I believe that when a child like Shay, who was mentally and physically disabled comes into the world, an opportunity to realize true human nature presents itself, and it comes in the way other people treat that child.

Then he told the following story:

Shay and I had walked past a park where some boys Shay knew were playing baseball. Shay asked, 'Do you think they'll let me play?' I knew that most of the boys would not want someone like Shay on their team, but as a father I also understood that if my son were allowed to play, it would give him a much-needed sense of belonging and some confidence to be accepted by others in spite of his handicaps.

I approached one of the boys on the field and asked (not expecting much) if Shay could play. The boy looked around for guidance and said, 'We're losing by six runs and the game is in the eighth inning. I guess he can be on our team and we'll try to put him in to bat in the ninth inning.'

Shay struggled over to the team's bench and, with a broad smile, put on a team shirt. I watched with a small tear in my eye and warmth in my heart . The boys saw my joy at my son being accepted.

In the bottom of the eighth inning, Shay's team scored a few runs but was still behind by three.

In the top of the ninth inning, Shay put on a glove and played in the right field. Even though no hits came his way, he was obviously ecstatic just to be in the game and on the field, grinning from ear to ear as I waved to him from the stands.

In the bottom of the ninth inning, Shay's team scored again.

Now, with two outs and the bases loaded, the potential winning run was on base and Shay was scheduled to be next at bat.

At this juncture, do they let Shay bat and give away their chance to win the game?

Surprisingly, Shay was given the bat. Everyone knew that a hit was all but impossible because Shay didn't even know how to hold the bat properly, much less connect with the ball.

However, as Shay stepped up to the plate, the pitcher, recognizing that the other team was putting winning aside for this moment in Shay's life, moved in a few steps to lob the ball in softly so Shay could at least make contact.

The first pitch came and Shay swung clumsily and missed.

The pitcher again took a few steps forward to toss the ball softly towards Shay.

As the pitch came in, Shay swung at the ball and hit a slow ground ball right back to the pitcher.

The game would now be over.

The pitcher picked up the soft grounder and could have easily thrown the ball to the first baseman. Shay would have been out and that would have been the end of the game.

Instead, the pitcher threw the ball right over the first baseman's head, out of reach of all team mates. Everyone from the stands and both teams started yelling, “Shay, run to first! Run to first!”

Never in his life had Shay ever run that far, but he made it to first base. He scampered down the baseline, wide-eyed and startled.

Everyone yelled, “Run to second, run to second!”

Catching his breath, Shay awkwardly ran towards second, gleaming and struggling to make it to the base. By the time Shay rounded towards second base, the right fielder had the ball - the smallest guy on their team who now had his first chance to be the hero for his team.

He could have thrown the ball to the second-baseman for the tag, but he understood the pitcher's intentions so he, too, intentionally threw the ball high and far over the third-baseman' s head.

Shay ran toward third base deliriously as the runners ahead of him circled the bases toward home.

All were screaming, “Shay, Shay, Shay, all the way Shay.”

Shay reached third base because the opposing shortstop ran to help him by turning him in the direction of third base, and shouted, “Run to third! Shay, run to third!”

As Shay rounded third, the boys from both teams, and the spectators, were on their feet screaming, “Shay, run home! Run home!”

Shay ran to home, stepped on the plate, and was cheered as the hero who hit the grand slam and won the game for his team

That day, said the father softly with tears now rolling down his face, the boys from both teams helped bring a piece of true love and humanity into this world.

Shay didn't make it to another summer. He died that winter, having never forgotten being the hero and making me so happy, and coming home and seeing his Mother tearfully embrace her little hero of the day.

Tuesday, July 6, 2010

Build advocacy skills this Saturday

Summer is a great time for building your skills to be an effective Parent Advocate for your child. On Saturday, July 10, at 10:00AM a two-hour workshop in Chicago will offer families ways to effectively advocate in many different situations with a variety of agencies and systems of care or services.

What will you learn?
- What advocacy means;
- How to improve your advocacy skills; and
- How you can make a difference for your family member.

Almost every week I hear that school personnel hate to hear the word "advocacy". Use of a more politically-correct term is recommended, so "they" don't get upset.

Well, folks, you can pussy-foot around the issue, or you can stand up for your child. When you stand for your child, you are standing up for all children.

Where is the workshop?

Family Resource Center on Disabilities
20 East Jackson Blvd., Room 300
Chicago
Phone: (312) 939-3513
Email: info@frcd.org

The cost? It's FREE!!! (but pre-registration is required)
Remember Saturday's deal on Metra fares, too.

Monday, June 21, 2010

Inclusion - Tonight (June 21)

Sorry for the late notice, but just learned of a speaker in McHenry tonight on the topic of "inclusion". Have you struggled to get your school to include" your child with special needs in its regular programs? Does your school house your child "down at the end of the hall", out of sight of the other students?

Tonight at GiGi's Playhouse McHenry at 7:00PM there will be a guest speaker from PROJECT CHOICES. The topic will be "inclusion".

Project Choices works collaboratively with school districts for children ages 3-21. For more information please go to www.projectchoices.org Hope to see you tonight!

Jean Boyle
Site Coordinator
GiGi's Playhouse McHenry
5404 W. Elm St. Suite A
McHenry, IL 60050
815-385-PLAY (-7529)
www.gigisplayhouse.org
http://mcgigis.blogspot.com/

educate.inspire.achieve

Thursday, June 17, 2010

Bullying - how prevalent is it?

Just how bad is bullying in schools in McHenry County?

Schools claim to have anti-bullying policies and programs. The State requires that schools be safe. Many organizations are examining the problems with bullying in schools.

Which schools are the worse?
Which schools have tight policies against bullying and take strict action fast to put a stop to it?

Which administrators are like ostriches?

What happens when students report being bullied to school counselors, social workers, deans, assistant principals?

Do they have to follow a "chain-of-command" or can they go straight to the top dog in the school? And be taken seriously?

"Boys will be boys" doesn't fly any more. And it's not just the boys who are bullies!

One idea might be to create an independent hotline for reports of bullying. Sort of like the McHenry County Crisis Line, but run jointly by teams that involve concerned parents, not just "the professionals". Bullying reports to the hotline could be compared with reports from schools.

If the hotline is getting calls about bullying at xxx School but the School denies any reports of bullying, there is a big red flag flying in McHenry County. Parent/educator teams could provide important support to the bullied student (or parent) in making and tracking reports to schools.

Thoughts, anyone?

Monday, May 17, 2010

National Autism conference right here in Chicago

Often you have to travel far and spend a lot of money on transportation and lodging to attend a national conference, but this month the Autism One Conference is right down the road in Rosemont!

It's May 24-30 at the O'Hare Westin in Rosemont. A local mom says it will be a fantastic conference — everything imaginable related to autism is there.

Presentations on:
Biomedical research and treatments
All of the therapies — educational, behavioral, communication, etc.
Alternative medicine
Government, legal and personal issues and advocacy
Adolescent, adult and Asperger's issues
And more!

Families can find out more and register at www.autismone.org/content/world-changes-may

Scholarships may be available for conference attendance through the Are of Illinois consumer stipend or the StarNet Family Fellowship. Visit
www.thearcofil.org/ and www.thecenterweb.org/starnet/funding.html

If you have questions, contact Linda Betzold at Linda.Betzold@tacanow.org

Chicago families are lucky to have this conference in our backyard. It may be the best autism conference of the year anywhere in the U.S.

Parent group to be postponed

Woodstock District 200 will not move forward at this time with a Parent Advisory Council for parents of students in Special Education. I was hoping for an April or May first meeting, but the Special Education Department has decided (unilaterally, I might add) to delay until Fall. And you know what that means...

In March I proposed that the Special Education Department survey parents to learn if they were interested in a parent advisory council or a parent support group (or both). There was cooperation in designing the questionnaire for the survey. Survey forms were to be distributed to all parents of students in Special Education.

How many were distributed? There are approximately 1,000 students in Special Education in District 200. It is unknown how many survey forms actually reached parents, but only 61 surveys were returned.

Fifty-four (54) want one or both group; 7 were not interested. I saw the survey forms on a table at Clay Street Academy, and they were not handed out to the parents of one student, whose annual review I attended.

How about at other schools? I heard that teachers responded that parents weren't interested. Now I, for one, do not believe that. I do believe the person who told me that. I just don't believe the information she was apparently given. Parents are interested.

However, I can tell you what parents are not interested in. They are not interested in being "talked at." They are not interested in being lectured. They are not interested in being told that the teachers (the "experts") know more about their children than they do. Parents are not interested in meetings that drag on and on and do not allow interaction or participation.

There is a parent advisory council at a school in Huntley with 30-40 active parents. When they are expected to sit and listen to teachers and administrators talk "at" them, they get frustrated. Fortunately, there are enough of them (parents) to make a loud noise and try to wrest control back from the "organization."

Woodstock parents, if you want to get started now, let me know. Forward this article to all the parents of Woodstock special education students you know. We can go ahead and organize now and gain the benefit of a support group over the summer and prepare to establish a parent advisory council for the Fall.

Want to get started? Email gus@gusphilpott.com

Sunday, May 16, 2010

Movie - The Horse Boy

Be sure to watch this movie about an autistic boy whose parents took him to Mongolia to see the shamans. Young Rowan Isaacson made a remarkable shift after the trip, and even before it was over.

This is a movie worth seeing. And visit www.horseboyfoundation.org, too.

Sunday, May 9, 2010

School is almost out

Start your planning now for how your kids are going to enjoy the summer and go back to school without having lost any of the ground gained during this school year.

Plan some learning activities for the summer. Make them read. Better yet, make them want to read. And show them how good math skills will actually help them in life, not just be drudgery.

There are plenty of materials available. Need help finding them? Just ask.

Who you gonna call...

... when your kids are having tantrums, biting their friends (or siblings or you), constantly interrupting you, using bad words???

Recently I came across two websites that will be of interest to all parents of younger children. And, most likely, to parents of older children, too, when they are acting like they are years younger. And maybe even some others we know...

Author and trainer Gail Reichlin gives presentations all over the country and abroad relating to positive discipline and communication for all ages. Boy! Could we use her right here in McHenry County!
Visit www.pocketparent.com/ and also www.parentsresourcenetwork.org/ for information and ideas. And you can order your very own autographed copy of the Pocket Parent from her website. Or call Read Between the Lynes Bookstore right here in Woodstock; if Arlene doesn't carry it already, she'll be glad to order it for you.
Gail's workshop and training style is described as interactive, funny, supportive and very practical.
When the new Parent Advisory Councils are up and running, maybe we can fill the Woodstock Opera House one night for a District-wide or County-wide program.
Interested?

Thursday, April 29, 2010

Bus driver deserves medal

Recently I met a schoolbus driver from rural Illinois. She related how she had stopped disorder and chaos on her bus and turned long rides into profitable use of time by the students. This driver definitely deserves an award or medal!

The driver's name and school district have been deleted from her message. So the next time you are inclined to give a hard time to your kid's schoolbus driver, remember this driver.

"The peer mentoring on my bus was never planned - it was something that just evolved. It's on an as-needed basis and has slowed down now the weather is nice.

"The flash cards were the idea of a middle school girl who wanted to help her cousin and sister with math and help with two other girls to keep the kids busy so I could watch the road. We have a lot of white outs and icy roads in the winter.

"I can't give you hard numbers as to how much the mentoring helped because I never thought to keep track. I've always checked the local paper and announced over the bus intercom all the bug and honor roll students. Now there are so many I have to have it written down I can't remember all the names.

"I've had this route for two years, it was a route everyone turned down. Let's just say the town has a bad reputation.

"The kids on Honor Roll are a combination of every type of background. The three girls that did the flash cards - two are form the "wrong side" of the Fox river and the third one from the "right". The two boys that first asked for help, one has a slight learning problem and the other is autistic. The kids that volunteer range from smart-mouthed high school boys to first graders showing kindergartners how to sound out words in a book.

"It was never an everyday thing , with all the end of the year field trips to talk about and less homework it is maybe once a week. We only have the two rules on the bus, anybody can help somebody (everybody is good at something) and you can't give them the answers you have to show them how to find the answers.

"Besides better grades I've noticed there aren't any book bags, lunch boxes, clothes or projects left on the bus and very little trash.

"There have got to be other drivers that are doing the same things.

"Next year I'll keep record of progress and be able to give solid data on these things."

Wednesday, April 28, 2010

Impassioned pleas - heard?

Two parents made impassioned pleas last night before the Woodstock District 200 School Board.

Did the Board hear them?

Both asked the school board not to can good aides from the special education classrooms of their children. Both had been told that the union makes the decisions.

I think not. Or, if it does, then the Board - and the parents - had better regain control over our school staffing.

With certain children in our schools (groups, I mean; not individual children), change is very difficult. During a school year they get used to a certain teacher or aide and they then settle into the school groove. When the District tosses out an aide or teacher, just because she is low person on the totem pole, this does not serve this student population.

One parent said that seniority shouldn't trump merit. And he's right. The school district has to be able to cleanse itself of "dead wood". When a teacher is just "running on empty", hanging on my her fingernails to retirement date, the District, in the best interests of its students (and other staff), must take action to send that teacher on her way.

Some teachers are happy, positive and fresh right up until the day they retire.

The parents of the children in Special Education must come together. A Parent Advisory Council may be a step toward a solution.

Plans are underway for an organizational meeting. Half the parents who responded to the recent survey favor meetings during the summer. Watch for upcoming news. Hopefully, fliers will go home to parents of all Special Education students in District 200 and that many will show up at early meetings.

You don't have to attend all meetings, and there will be many ways to participate, including meetings, email, perhaps teleconference and even webinars. It's the Space Age, folks.

Tuesday, April 27, 2010

D-200 SpEc survey results

Just prior to spring break in the Woodstock (Ill.) School District 200, parents of students in special education were offered an opportunity to participate in a survey that asked their interest in a Parent Advisory Council and/or a Parent Support Group.

As of Monday, 61 surveys had been received. Fifty-four (54) indicated an interest; seven (7) said they were not interested.

The first question that came to my mind was, where are the other 600-700 surveys? There are over 1,000 students in Special Education in Woodstock D-200. Because the survey was handed out (not mailed) by teachers at parent-teacher conferences, IEPs and Annual Reviews, it seems to me that 200-300-400 could have been returned, if there had been strong teacher encouragement.

At one school the surveys were merely placed on a table in a common area. At at least one conference, no mention of the survey was made to the parents. I know; I was there with the student's parents.

One parent told me today that, when the survey was handed to her, the teacher said, "You probably don't want to fill this out. You can take it with you, if you want, and mail it back."

I suggested that another survey needs to go to all the parents who didn't respond. I don't think they'd get mad, do you? Most parents want to express their opinions about their childrens' education.

On the second survey, I would inquire why they didn't respond to the first and offer some possible choices:
__ I really am NOT interested in either group
__ Never saw the first survey
__ Took the first one home but lost it
__ Didn't think my opinion would be listened to
__ What's the use? Nothing is going to change
__ Teacher told me not to bother filling it out
__ Other: ________________________________

As far as I know, the survey was prepared only in English. I'd love to be wrong about this. If it was in English only, exactly how where the parents who don't speak English surveyed?

D-200 will now announce an organization meeting of parents. Meeting time preferences were about equally divided between 6:00-7:00PM and 7:00-8:00PM. Personally, a one-hour meeting is not long enough to accomplish much.

The areas of parent interest were varied and provide enough "meat" for years of programs. The interests will be the topic of a different article.

Many thanks to the 61 parents who returned the surveys. Please spread the word about this blog and the upcoming programs at District 200. There will be strong parent leadership and involvement. Come and play an important part.

These will not be dull, dreary, boring, get-talked-to meetings. These will be your meetings!

Wednesday, April 7, 2010

D-200 Survey for SpecEd Advisory/Support Groups

During the parent-teacher conferences just held in the Woodstock (Ill.) District 200 schools, parents of special education students were surveyed about interest in an advisory council and/or a support group.

At each conference a form was distributed to parents (or it was supposed to be distributed). They could complete it on the spot or take it home and send it back.

Forms were to be sent home for students who did not have parent-teacher conferences scheduled.

About five years ago I urged D-200 to compile email addresses for parents of special education students, in order to be able to communicate directly with them. Apparently, email addresses are not routinely obtained. Electronic communication with parents of any student, special education or not, should be a no-brainer.

Parents should be able to expect survey results in the near future.

If you are a parent of a special education student and didn't get, or didn't return, the survey, please do so within the next few days. Thanks!

Needed - a "Phoebe Prince Law"?

Read today's article of a similar title on www.woodstockadvocate.com

Bullying in our schools must be stopped.

Schools are supposed to be safe environments for learning. For every student!

Saturday, March 27, 2010

All classes - no progress

Yesterday I attended an IEP/Annual Review for a student of Woodstock's own therapeutic day school at Clay Academy (formerly known as Clay Elementary School). I was invited by the student's parents and thought I was going to a parent-teacher conference.

Imagine my surprise (well, not too great) at being ushered into the principal's office and finding quite a few people present: principal, nurse, social worker, outside agency rep., school district office rep, teacher, case manager and two parents.

This particular student has had a very high rate of absenteeism; in fact, out of 43 school days since mid-January, he attended on 17 (if I remember the count correctly from the attendance report).

Although the 15-year-old student was invited to attend, he did not accompany his parents to the meeting. There are some meetings where it's better that the student not attend, and this was one of them.

His progress was reported as non-existent, "due to the number of absences." After listening for about 90 minutes, I was asked if I had a comment, and I asked whether the school had attempted to determine the cause for the absences. Exactly, I meant.

I suggested a Functional Behavior Assessment, which is a well-known tool designed to reveal the causes of any particular behavior are. If properly used, an FBA can often pinpoint what is leading up to the behavior in question. You look for causes; what happened before the behavior;what was to the student; who was present; what happened before that? And before that?

The popular phrase, "the devil is in the details", comes to mind. Teachers and staff must be honest and complete in their reporting.

If a student reports that a teacher is constantly yelling at him, a teacher may deny it. But, is it happening? Responses are sometimes "politically correct". Sometimes (often?) they are couched in "workshop" or "in-service" terms that protect the teacher. But, if the student feels "yelled at" and shuts down or acts out, and it's a therapeutic school setting for special-needs students, then the teacher and staff should be figuring out Plan B.

These teachers have a tough job. There is no doubt about it. But they also have smaller caseloads and small classes. We need, and the kids deserve, the "Ron Clarks" and the "Erin Gruwells" of the educational world. If you don't know who they are, do a search on Google for "Ron Clark 55" and Erin's name.

Sorry, but "no progress" is not an acceptable report. There must be some progress, even if you only pick up from the last day of attendance and go on (even a little).

Monday, March 22, 2010

Bobby Petrocelli - great!


Bobby Petrocelli gave a high-energy talk tonight at Woodstock North High School at the end of a long day. But you never would have known about his long day from the pace and power of his talk.

Earlier today he spoke at Woodstock High School and this afternoon he gave two presentations at Woodstock North. I guessed the audience to be about 70-90, including many students who returned to hear him again.

At least one student brought a fellow student who had been absent from school today, insisting that her friend "had" to hear Bobby and meet him.

Key sentences and ideas tonight were:

"What you put your time into, is what you'll be successful at."

1. Pain is inevitable; suffering is optional.
2. Offense is inevitable; forgiving is optional.
3. change is inevitable; growth is optional.

"How you respond to the mistakes you make in this game (life), will determine how you play the rest of the game."

District 200 is providing some great programs this year for students (special ed and regular ed)and parents. Watch for upcoming programs and attend them. Spend an evening with your kids, away from the TV and away from videogames.

You (and they) will be glad you did.

April 12 Town Hall Meeting in Woodstock

On April 12 a town hall meeting will be held at the Woodstock (Ill.) Opera House to discuss youth binge drinking, prescription medication abuse and heroin use.

For details, please see the complete article on www.WoodstockAdvocate.com

On that website, search for "binge" to find it quickly.

Tonight at Woodstock North H.S.

Tonight, March 23, Woodstock School District 200 will present speaker Bobby Petrocelli and "Ten Seconds Can Change Your Life Forever" from 7:00-8:00PM at Woodstock North High School, 3000 Raffel Road, Woodstock, Ill.

Petrocelli and his wife were asleep in their own bedroom, when a drunk crashed his pick-up truck into the house, killing Bobby's wife and injuring Bobby.

This program will be a follow-up to a presentation to students by Petrocelli on today's youth and the decisions they make. Topics of discussion will include substance abuse, dating, bullying and self-worth.

Light refreshments will be served from 6:00-7:00PM. The program is open to the public, and there is no charge.

For more information, visit www.10seconds.org/

Wednesday, March 17, 2010

April 1st Parent calls

On April 1st (no April Fool's trick here) the Illinois Department of Human Services, Division of Mental Health, Child & Adolescent Services invites all Illinois parents of children with emotional and/or behavioral health concerns to join in on the monthly Parent Empowerment Call.

Parent Empowerment Calls are held on the first Thursday of the month. Two sessions are available; available times and dial-in number details are listed below.

The next Parent Empowerment Call is scheduled for Thursday, April 1, 2010 with two sessions offered: 12:00-1:00 PM and 7:00-8:00 PM.

For the 12:00PM call, dial 800-260-0712 and use Participant Access Code: 120964

For the 7:00PM call, dial 866-812-0461 and use Participant Access Code: 120977

These are toll-free educational calls, offered to all parents in Illinois who have a child with an emotional and/or behavioral concern, and they will focus on giving parents information they need to advocate for and support their children.

Monday, March 15, 2010

Parent Leadership Institute - April 12,13

Take a look at these questions that will be addressed at the Parent Leadership Institute in Normal, Illinois on April 12-13.

- What is the missing piece to the student achievement puzzle?
- What do we want our students to learn?
- How will we know they have learned?
- How will we respond when a student has difficulty learning?
- How can parents and educators work together to improve outcomes for students?

Pretty powerful, eh?

This Institute is sponsored by the Parent and Educator Partnership. Information can be viewed at www.pepartnership.org

If you think you might be interested in attending, contact them right away!

TACA will meet this Saturday

The McHenry County chapter of Talk About Curing Autism (TACA) will meet this Saturday in Crystal Lake. If you are interested in autism or in communication technology, join them to hear Hilary Hoffstetter, a consultant from DynaVox, and Shannon Brooke, a speech language
pathologist from Easter Seals in Waukegan.

Topic: Augmentative Communication Technology

Saturday, March 20, 2010
Time: 4:30-6:00PM
Home State Bank
611 S. Main Street
Community Meeting Room on Basement Level
Crystal Lake, IL 60014

Hilary Hoffsetter and Shannon Brooke will speak about low- and high-tech assistive communication technology and systems that are available for any non-verbal individual, not just those with autism. Devices will be available to handle and try out at the meeting. Hilary and Shannon will also be discussing how to determine the type of assistive technology that is appropriate for the non-verbal person in your life and how to know when someone is ready for a new communication strategy.

For more information check http://meetup.talkaboutcuringautism.org/illinois/index.html

Sorry, child care is not available at the meeting.

If you have questions, please contact Linda at 847-922-5392 or linda.betzold@tacanow.org

TACA —Talk About Curing Autism is a non-profit organization composed of parents of children with autism who volunteer to help other parents of children with autism. Check out their website at www.tacanow.org

Saturday, March 13, 2010

What happens next?

Last week in Woodstock's Administrative Adjudication Court Judge Eterno listened at several different times to parts of a case against a parent whose high school child was truant from Woodstock High School.

How did she happen to be charged? Because her kid was absent at least 29 days from school?

The mother wasn't in court, because an injury from a fall on the previous day prevented her appearance; but her husband was there.

Judge Eterno was very careful, as he tried to ascertain whether the husband was able to stand in for his wife. At one point, Judge Eterno told the man to call his wife and determine the extent to which he was to stand in her place that day.

When the case was called again, it appeared that the man intended to plead that his wife was "liable", and Judge Eterno tried to confirm that his wife understood the ramifications of such a plea. It appeared the judge had serious reservations about accepting the plea from the husband, so he continued the case for a month. Several times Judge Eterno expressed great concern that the boy would be truant many more days.

Since the address from which the kid was truant was 112 Grove Street, Woodstock, I realized the kid is a student at the Clay Street Academy. The "Academy" is a District 200 school in Woodstock for students who qualify for placement in a non-resident therapeutic day school because of neurological disabilities or other special needs.

Unless things have changed in District 200 over the past 5-8 years, little collaboration is done by the entire education system to help parents who struggle with educational and attendance problems of their kids. Parents (and students) are too often just at the "effect" of the system, when a meaningful collaborative effort might result in a much better result for all - for the student, for the parents, for the teachers and staff.

What does a parent do who cannot control her child? Why is the student truant? Has the school determined the reasons for the truancy? I mean, the real reasons...

Wednesday, March 10, 2010

WANTED - Parent Partners


In an effort to support parents and educators in their work of improving results for all students, the Parent & Educator Partnership is hosting the Parent Leadership Institute. The Institute goal is to equip parent leaders to work collaboratively with their school districts to engage families in meaningful participation. Meaningful participation happens when parents and educators have an understanding of school improvement.

This two-day Institute is designed to provide parent leaders with tools and information necessary to understand school improvement and how to facilitate collaboration between parents and professionals to improve outcomes for students.

Where: Marriott – Bloomington/Normal Hotel & Conference Center
201 Broadway Avenue
Normal, IL 61761

When: April 12, 2010: 10:00 am - 7:30 pm and April 13, 2010: 8:30 am – 3:30 pm

The Institute will address the following questions:

- What is the missing piece to the student achievement puzzle?
- What do we want each student to learn?
- How will we know when each student has learned?
- How will we respond when a student experiences difficulty in learning?
- How will parents and professionals work together to improve outcomes for students?

The answers to those questions involve understanding:

- The role of Family involvement in education;
- The Illinois Learning Standards, including Social and Emotional Learning;
- Data to improve student outcomes;
- Response to Intervention;
- Facilitation of Parents and Teachers Talking Together.

Who should attend?

- Parents of school-aged children who are willing to volunteer as a Parent Leader within their school or district in a leadership role.
- LEA representatives who want to develop parent leadership.
- Parent mentors and liaisons.

Parent participant requirements:

- Facilitate collaboration among parents and professionals about how they can work together to improve education.
- Work collaboratively with the local school district to implement a plan for improvement.
- Partner with the Parent & Educator Partnership for two years.

Services provided during the Institute:

All participants will receive a conference binder and meals (lunch and dinner on Monday, and breakfast and lunch on Tuesday).

In addition, Parent Leaders will receive:
o Reimbursement for travel
o 1-night lodging at the Marriott Conference Center
o Parent and Teachers Talking Together Handbook

To learn more about being a parent leader, click on Parent Liaison Program. www.pepartnership.org/pdfs/ParentLiasonProgram.pdf

Two Choices

Here's one that came my way this morning. I hope you enjoy it.

What would you do?....you make the choice.. Don't look for a punch line, there isn't one. Read it anyway. My question is: Would you have made the same choice?

At a fundraising dinner for a school that serves children with learning disabilities, the father of one of the students delivered a speech that would never be forgotten by all who attended. After extolling the school and its dedicated staff, he offered a question:

‘When not interfered with by outside influences, everything nature does, is done with perfection. Yet my son, Shay, cannot learn things as other children do. He cannot understand things as other children do. Where is the natural order of things in my son?'

The audience was stilled by the query.

The father continued. 'I believe that when a child like Shay, who was mentally and physically disabled comes into the world, an opportunity to realize true human nature presents itself, and it comes in the way other people treat that child.'

Then he told the following story:

Shay and I had walked past a park where some boys Shay knew were playing baseball. Shay asked, 'Do you think they'll let me play?' I knew that most of the boys would not want someone like Shay on their team, but as a father I also understood that if my son were allowed to play, it would give him a much-needed sense of belonging and some confidence to be accepted by others in spite of his handicaps.

I approached one of the boys on the field and asked (not expecting much) if Shay could play. The boy looked around for guidance and said, 'We're losing by six runs and the game is in the eighth inning. I guess he can be on our team and we'll try to put him in to bat in the ninth inning.'

Shay struggled over to the team's bench and, with a broad smile, put on a team shirt. I watched with a small tear in my eye and warmth in my heart. The boys saw my joy at my son being accepted.

In the bottom of the eighth inning, Shay's team scored a few runs but was still behind by three.

In the top of the ninth inning, Shay put on a glove and played in the right field. Even though no hits came his way, he was obviously ecstatic just to be in the game and on the field, grinning from ear to ear as I waved to him from the stands.

In the bottom of the ninth inning, Shay's team scored again.

Now, with two outs and the bases loaded, the potential winning run was on base and Shay was scheduled to be next at bat.

At this juncture, do they let Shay bat and give away their chance to win the game?

Surprisingly, Shay was given the bat. Everyone knew that a hit was all but impossible because Shay didn't even know how to hold the bat properly, much less connect with the ball.

However, as Shay stepped up to the plate, the pitcher, recognizing that the other team was putting winning aside for this moment in Shay's life, moved in a few steps to lob the ball in softly so Shay could at least make contact.

The first pitch came and Shay swung clumsily and missed.

The pitcher again took a few steps forward to toss the ball softly towards Shay.

As the pitch came in, Shay swung at the ball and hit a slow ground ball right back to the pitcher.

The game would now be over.

The pitcher picked up the soft grounder and could have easily thrown the ball to the first baseman.

Shay would have been out and that would have been the end of the game.

Instead, the pitcher threw the ball right over the first baseman's head, out of reach of all team mates.

Everyone from the stands and both teams started yelling, 'Shay, run to first! Run to first!'

Never in his life had Shay ever run that far, but he made it to first base. He scampered down the baseline, wide-eyed and startled.

Everyone yelled, 'Run to second, run to second!'

Catching his breath, Shay awkwardly ran towards second, gleaming and struggling to make it to the base.

By the time Shay rounded towards second base, the right fielder had the ball - the smallest guy on their team who now had his first chance to be the hero for his team.

He could have thrown the ball to the second-baseman for the tag, but he understood the pitcher's intentions so he, too, intentionally threw the ball high and far over the third-baseman's head.

Shay ran toward third base deliriously as the runners ahead of him circled the bases toward home.

All were screaming, 'Shay, Shay, Shay, all the Way Shay.'

Shay reached third base because the opposing shortstop ran to help him by turning him in the direction of third base, and shouted, 'Run to third! Shay, run to third!'

As Shay rounded third, the boys from both teams, and the spectators, were on their feet screaming, 'Shay, run home! Run home!'

Shay ran to home, stepped on the plate, and was cheered as the hero who hit the grand slam and won the game for his team.

'That day', said the father softly with tears now rolling down his face, 'the boys from both teams helped bring a piece of true love and humanity into this world.'

Shay didn't make it to another summer. He died that winter, having never forgotten being the hero and making me so happy, and coming home and seeing his mother tearfully embrace her little hero of the day!

AND NOW A LITTLE FOOTNOTE TO THIS STORY:

A wise man once said every society is judged by how it treats its least fortunate amongst them.

Friday, March 5, 2010

Life Skills training needed

At last evening's Transitional Youth Work Group meeting at the McHenry County Mental Health Board offices, a small group (where was everyone???) discussed the usefulness of a strong life skills training program for youth and young adults in our county.

A "Life Skills 101" is offered through Family Service in McHenry, and it includes budgeting and skill-building for living independently. Mary Lu Seidel discussed the transitional, affordable housing that will be available through CAMHCO.

I questioned whether youth today are learning how to live on their own; i.e., not just to talk about it, but to actually acquire the skills needed to live independently: shopping, budgeting, paying rent and utilities on time, buying food and rationing it through the week, preparing meals and cleaning up, housekeeping, not destroying rental property, etc.

High schools in McHenry County are to offer transition programs for special education students between the ages of 18-21. These programs are to prepare our young adults to make a smooth transition from high school to the next step in their lives, whether it's college, junior college, military, work or whatever.

One such high school program offers an occasional cooking class for its students. Today's menu? Macaroni and cheese. And hot dogs.

So much for teaching the kids to prepare nutritious meals, eh? Now, will somebody please tell me the redeeming educational value is opening a box and dumping contents into boiling water? Or nuking a hot dog?

There are several ways to cook a hot dog. You can boil it. You can slice and fry it. Or you can do it my way. Open the bun, put on the dog, wrap it in a paper towel and stick it in the microwave for 20 seconds. Add mustard and eat.

By the way, I haven't had a hot dog since August. Not that I don't think about having one...

Oh, yes. The clean-up? Throw away the paper towel.

I wonder if they are taught to put very hot soapy water in the mac & cheese pan, so that it can soak while they are eating the mac & cheese. That'll make clean-up very easy.

But where is the instruction for preparing a nutritious, balanced meal?

School starting hours

How does your kid do first thing in the morning? Is he an early riser, dressed, organized, ready to go, eager to go to school, on the bus on time?

Yes, Virginia, there are children like this. Three of them, I think. None in McHenry County, Ill. - - - just kidding. There might be three; maybe, even four.

In George Will's syndicated column, carried yesterday in the Northwest Herald, he gave "Advice for parents: Lighten up, stop overparenting."

In the fifth column he wrote, "When Edina, Minn., changed its high school start from 7:25 a.m. to 8:30 a.m., math/verbal SAT scores rose substantially."

I recall a Letter to the Editor (of The Woodstock Independent, I believe) by a Woodstock mom, after Woodstock School District 200 changed its start times and made them earlier. This wise mom wrote that she agreed that kids could learn more in longer school days but that they would have to be awake first!

Tuesday, March 2, 2010

More CelebrateCALM news

The following is from Kirk Martin's e-newsletter today. Kirk's website is http://www.celebratecalm.com/, where you'll find all sorts of helpful information and online courses.

Kirk and his 16-year-old son, Casey, will be in Elmhurst on Saturday and Oak Park on Monday. Look on this site and on http://www.woodstockadvocate.com/ for more information.

Kirk will be happy to add you to his email distribution list. Just write to him at celebratecalm@yahoo.com and tell him "Gus sent me".

You can forward this article by using the small white envelope at the bottom of this article. Just click on it, fill in your friend's email address, add a note, try to decipher the scrambled code of letters, and hit "Send Email".


You Mean There's Nothing Wrong with Me, Mom?
It is sad what society is doing to our kids. Can you identify with this Mom?

"My son has had difficulties with concentration, social skills and sensory issues since preschool. The reports from school make it seem like he has such a dreadful future-it's so negative and doesn't describe my son. It makes me want to cry."

You are not alone. You love your son, your daughter, you remember the innocent joy they spread as little ones. Then that moment comes-maybe at a birthday party, the first day of pre-school, perhaps midway through grade school-when you realize your child doesn't necessarily fit the mold. He's different. We get scared, even embarrassed, and fear our children won't be successful. Let's teach our kids three truths to break free from dangerous premises.

1) There is nothing inherently wrong with you. Instead of celebrating a child's unique strengths and individuality, our society perpetuates a false premise-that there is something wrong with kids who think differently. This flawed premise leads to a pernicious conclusion-that society must change these children to make them learn like everyone else. That's the message our kids internalize throughout childhood. It leads to devastated confidence, confusion ("I feel okay, but why does everyone treat me like I'm not?") and an endless focus on the negative.

The truth is that while our kids need tools to overcome weaknesses, they are purposefully wired with unique strengths. Do we lament the fact that many compliant kids lack creativity, initiative and imagination, that they often wait to be told what to do?!

This email will break your heart, but it's very common.
"Kirk, my daughter had just gotten suspended...again...driving her home, I'm fuming, embarrassed, wanting to lecture so I put the Kids CDs in...look in the rear view mirror and Katey's iistening... I hear her call out real sweet, "Mom?"...She says, "Does that mean there really isn't anything wrong with me, I have a good brain?" I just about it lost it...pulled over and climbed into the back seat next to Katey...she asked if we could just listen to the rest before we went home...we talked about why she gets in trouble, what she can do differently next time, all the good things...we got home and made a poster of all her good qualities...we filled that poster up and hung it in her room...every morning and night before bed, we pick a quality and talk about it...thank you to you and Casey for this gift to our kids. Katey is on her way."

2) You have advantages and strengths other kids don't have. We spend so much time trying to fix our kids' weaknesses that we have little energy and time left to focus on their strengths. And the truth is that the happiest, most successful people in life have one thing in common: they are using their unique skills and passions to help other people.

So like the Mom above, it's important to identify and actively cultivate our kids' gifts and passions. What do your kids enjoy doing? What are they naturally good at doing? Who do they have an affinity for--younger children, senior citizens, animals, handicapped children?

You know what else our kids have that's unique? Huge hearts. Get your kids involved in a service project, using their talents to help other people, and I guarantee you will see defiance, boredom and negativity fade away. Using a strengths-based approach in the classroom is proven to improve academic and behavioral performance.

3) Society needs you-you have a great future ahead of you. Ironically, the very society that has labeled and devalued these kids desperately needs the unique qualities our kids possess. Who else possesses the energy, creativity, innovation, passion and persistence that lead to breakthroughs in science, the arts and business?

One of the big ah-hah moments on the CDs in when kids hear that the iPod (and just about every innovative product, service, video game, movie and music we enjoy daily) was created by someone whose brain was wired exactly like our kids'. Casey and I spend time talking about finding your purpose...because once kids find their purpose, much of the anxiety and defiance fades away.

When we empower our kids with strategies to overcome issues with concentration, social skills, anxiety, meltdowns and more, they can be wildly successful. Ask your kids how they want to use their talents. Use the workbook on the CD to create a positive action plan with your children--this is the very tool Casey continues to use to chart his path.

Sunday, February 28, 2010

CelebrateCALM - this Saturday, Elmhurst

Kirk Martin and his son, Casey, will present a free program on Saturday, March 6, in Elmhurt. Please see a full description of the program on www.woodstockadvocate.com

Huntley's Special Ed PAC

The Huntley School Distrcit 158 has a Special Education Parent Advisory Committee that meets monthly. Generally speaking, the group meets on the second Thursday at 6:00PM. Parents have been extremely vocal in their demands for services for their children and for proper allocation of stimulus funds anticipated by the District.

The PAC has a presence on the School District's website. You can view it at www.district158.org/special/Special%20Needs%20Parent%20Network.htm

The group meets from 6:00-7:30PM, which is probably pretty hard on parents with little ones at home who expect a meal about that time but, for whatever reason, that's the time the group meets.

When viewing the webpage recently, this particular sentence (the original is in Red) caught my eye:

(*Note- Our meetings will begin and end promptly as scheduled, allowing staff and community to respect professional and personal commitments. "Please drive safely, everyone.")

When I read that the first time, I felt my stomach muscles tighten. My first reaction was, "What do they (the school staff, who wrote it) really mean? Do they mean, 'Look, you all. We have worked hard all day and we're not going to spend the entire night here."'

Then I thought, "Oh, maybe I'm just being too sensitive (or too critical)", so I did a little checking. The first call I may confirmed my suspicion. That's exactly what is meant. When 7:30PM comes, they are out the door.

I'm all for meetings that start on time and end on time. But this in-your-face announcement came across immediately as disrespectful and impolite.

The same objective (to end a meeting on time) could be accomplished by good time management during the meeting and an agenda that is not too full and which allows adequate time to address the concerns of the parents and the staff. As the meeting approaches the scheduled End time, the evening's moderator could arrange for unfinished business (and there is probably a lot of that) to addressed between meetings or at the next meeting.

Considering the Special Education turnover in D-158, parents probably have many, many questions.

Saturday, February 20, 2010

TACA Meeting a success

This afternoon's TACA support group meeting was the best support group meeting I have ever attended. The local chapter of Talk About Curing Autism met at Home State Bank, Crystal Lake, and there were about 32 parents there, plus the organizers and presenters.

The organizers, Linda Betzold and Sara DiFucci, opened the meeting with announcements about upcoming meetings, information resources for parents, respite offerings and an overnight camp for kids. Then the speakers were introduced. Sonja Hintz, a nurse, and Barry Smeltzer, a phyician's assistant, gave very interesting information about their work with patients diagnosed with autism, and then they answered questions which had been submitted before the meeting. In addition, they answered many questions from the audience.

The chapter operates a lending library, and it also gives parents a free copy of The Families of Autism Journey Guide. One of the local chapter's members says, "It's a 300+ page book that includes everything we wish we had been told when our kids were diagnosed."

Occasional fundraisers are organized so that the support group services are available to families without charge. A website may soon be available for donations to the local chapter; in the meantime, donations can be sent to Linda Betzold or to Sara DeFucci.

What made this support group so positive was the strong interaction between the speakers and the audience and their willing to address fully the questions and topics from the audience.

The speakers were from True Health Medical, 603 Diehl Road, Ste 135, Naperville, IL; phone (630) 995-4242

For information about TACA and the local chapter, contact Linda.Betzold@tacanow.org or Sara.DiFucci@tacanow.org

Also, visit www.tacanow.org/; it's loaded with information for parents. It contains tons of information on diet, biomedical treatments, special education law, dealing with insurance and more.

Future local meetings will be March 20 and April 17.

On February 27 TACA chapters in Wisconsin will hold a conference. Information at http://www.realhelpnowconference.org/

Information about a conference in Baltimore on Aptil 8-11 is available at http://www.defeatautismnow.com/

The AutismOne conference in Rosemont, Ill. will be May 24-30. Information at www.autismone.org/content/world-changes-may

Parent Conference - 3/13/10 at MCC

Option & Advocacy's 2010 Parent Conference will be held at McHenry County College on Saturday, March 13. Co-sponsors are Family CARE and SEDOM. This conference is specifically designed for parents of children with disabilities/delays from birth through 21 years of age.

Complete details for the conference can be viewed at www.optionsandadvocacy.org/

Cost is $35.00 per participant ($50.00/per couple), and scholarships may be available through the Arc of Illlinois (www.thearcofil.org/document.asp?did=35) and STARNET (www.thecenterweb.org/starnet/fund-fellow.html).

Register and apply early.

Friday, February 19, 2010

Schools - gotta love 'em

Some days you have to have a lot of love to love schools (or, more correctly, teachers and staff).

I happen to be picky about things being done correctly. To me it is one demonstration that people care, especially in written communications.

I'm thinking right now of a couple of meeting notices that have been mailed to me this school year and also of my stepson's IEP.

First, the notices. Like, today's notice. In today's mail came a Notification of Conference. It used to be that the Special Ed staff would check around to learn if a given date and time would be convenient. I guess those days are gone. What happens now? They just mail out the Notice.

But here's the part of the Notice that gets me. I've been called a lot of things in my life, but today the school district reached a new high. Or low. Over the years I've been called my stepson's father. Or stepfather. Or even ex-step-father. But now? I have finally graduated to "Other."

"Other"? What's that? Even my stepson's mother got the title of "Other" on this notice. And it had to be typed. It wasn't a simple box to be checked.

I think I'll show up at the meeting with my own name badge: "Gus Philpott - Other"

Wait; there's more.

A previous Notification of Conference arrived with my name wrong. Actually, not wrong. Somebody else's name. Ever since 1996, the school district has known me as Gus Philpott. That's Philpott; P-h-i-l-p-o-t-t. Not all that hard. I might even forgive them if they dropped the last -t-.

But on that notice, for the first time ever, the school district put my last name down as my stepson's last name. Apparently, I was the only one who noticed it. At the meeting I waited for someone to acknowledge the error, but it didn't happen.

The pecking order of names on Notices is also important to me, because I "get" the subliminal message that is sent. For a meeting involving a student, it seems to me that the student's name ought to be the first name on the list. Or the second, or maybe the third. Not the last!

Other errors? How about typos and misspelled words? They are different, you know. We all know what typos are. But when a word is misspelled, that's not a typo. Like some examples?

How about quaterly? And Quartelry? Don't you think that at least one person on an IEP Team of 7-10 school employees would notice a typo and call it to the attention of the high-priced person who typed it? Apparently, no one is brave enough.

But the prize word of the year was "upserp". That's not a typo. Here was the sentence. "(Student) will accept the decisions/directions he is given without trying to upserp the hierarchy in a given situation." And it has been that way for over a year. At a meeting last spring a teacher read the sentence. I thought she might just read the correct word ("usurp"), but she hesitated and then read "upserp". And none on the school staff batted an eye.

There must have been $400,000 worth of payroll in that room, and no one said, "What was that word?"

TACA meets 2/20/10 4:30PM

For information about tomorrow's meeting in Crystal Lake, Ill. hosted by TACA (Talk About Curing Autism), please see the article on www.woodstockadvocate.com

Tuesday, February 16, 2010

ADHD Roundtable/Gurnee - tonight

Tonight (Tuesday) at 6:30PM the ADHD Roundtable will sponsor a workshop for those interested in ADHD in Gurnee at the Warren Township Youth and Family Services, 17801 W. Washington St., Gurnee, Ill. (corner of Washington and Almond, enter on Almond).

Attorney and Special Education Law Consultant Maureen Lowry-Fritz, J.D., M.A., will present the program, titled "Understanding the Body of Special Education Law... From Head to Toe" from 6:30PM-8:00PM.

To register for this free program, go to http://wtysroundtable.eventbrite.com/

About tonight's program: "American law is much like the human body. It is an assembly of independent components, each of which 'gives life' to the legal system as a whole. Special education law is no exception. Parents and educators alike must understand how the Constitution, statutes, regulations and case law interrelate to generate what we know as 'special education law.' When all parties understand the sources and roles of the law in special education, they can more effectively and efficiently work together to develop optimal special education programs for children with disabilities."

If you'd like to talk with Maureen Lowry-Fritz about hiring her as a consultant for your child's IEP or other services, she can be reached at 630-222-9735.

Friday, February 12, 2010

Ten Seconds will change your life forever


Woodstock School District 200 will present "Ten Seconds Will Change Your Life Forever" on Monday, March 22, from 7:00-8:00PM at Woodstock North High School, 3000 Raffel Road.

This program will be a follow-up to a presentation to students by Bobby Petrocelli on today's youth and the decisions they make. Topics of discussion will include substance abuse, dating, bullying and self-worth.

Light refreshments will be served from 6:00-7:00PM.

For more information, visit www.10seconds.org/

Tuesday, February 9, 2010

D-200 to cut pre-school?

D-200 will hold an important school board meeting tonight, when it discusses cuts to the pre-school program. State-funding cuts are blamed for the decision to alter the program and change it to a tuition-based program. The school board meets at 7:00PM at Clay Professional Development Center (sorry, but I have to laugh at that name every time), 112 Grove Street, Woodstock.

According to the article this morning in the Northwest Herald, the program is "for at-risk children who are eligible under the state grant guidelines. Specifically, the student are low income and have academic status and family issues. The students often come from the homes of single parents or young parents."

Right.... and these are just the ones who can afford to pay tuition for their pre-school children to enroll in the D200 pre-school. Right?

Helloooooooo......

Cut these services now, and guess what? More problems in the lower grades - in grade school, middle school and high school. And more problems mean higher expenses.

The Verda Dierzen School principal told the NWH reporter, "We definitely will be losing some fabulous staff members." While she didn't say "teachers", is those the "staff members" to whom she is referring?

D200 opened a number of new schools recently, but didn't the student population explosion fail to materialize when the housing bubble burst?

Why not close some of the now-unneeded schools, cut expenses there, and save important programs that prepare the youngest students for a better chance to succeed?

Or does pre-school do that? Maybe pre-school isn't needed for any student. Whatever happened to kids enrolling in kindergarten and starting their education then?

Help me out here, parents and teachers.